Finding relief is quite the task, especially when a person has more than one condition that causes pain or uncomfortable
I had to think about this a bit and came up with this list. My cats Anytime I feel cruddy I go to my cats. Petting and snuggling with them helps me focus on something positive and comforting Video games Video games keep me distracted and entertained My go to movies Alien, Aliens, Pacific Rim, LoTR, and a few others help me be distracted Music Genre depends on my mood, I like metal, some pop, trance/house/etc., classical or soundtracks Audiobooks If I am unable to focus, I will go for audiobooks while I’m laying down and resting
Due to my inability to work a “normal” job *annoyed face*, I am working on a couple avenues of income that are more flexible than a more traditional office career. Freelancing as a project coordinator and volunteer manager with administrative assistance experience, and writing my blog and fictional stories. I’m starting to write based on dreams I have had. I’ll be expanding these, mostly, incomplete stories into both written and webcomic forms. I hope. I have quite a bit of drawing and webcomic practice in my future, and I need to read more about creative writing and how to tell great stories (I’m told by friends that I am a decent storyteller and just need to expand on these dreams). Thankfully I have a lot of material to work with, my subconscious is quite imaginative. I will continue my blog because it is essential to me to create space for others who need a place they feel comfortable, as well
My pain comes from multiple sources; Interstitial Cystitis, osteoarthritis, headaches/migraines/sinuses, fibromyalgia, and sometimes IBS. I have kept a pain diary to track my symptoms and draw correlations between food, activities, weather, and the like, to my pain. Correlation does not equal causation, but it’s a place to start. Especially with diseases that are not well understood. The favored approach to asking about pain is to measure it on a scale of 1 to 10, this tool isn’t the best because it assumes the person only has a single type of pain at any given time. For those of us who suffer from multiple pain conditions, this query seems like a trick question. I’ve started focusing on each individually if I’m in for a specific thing I stick to that. A snapshot of this moment: 1 = No pain, 10 = Worst pain imaginable Right now my overall pain is 5, there are no days when I’m pain-free. Most days I’m
Hobbies! (I had a little time to squeeze this in) I have a lot of hobbies. I love to make/create things, it’s improved my mood, and I feel like I accomplished something when I finish a project. Knitting I’m going to learn to crochet this year. Yay YouTube! It’s a fun activity to do while watching TV/Movies. Sewing I like to make my own clothing and costumes from time-to-time. I also enjoy silk embroidery. Painting and drawing On pretty much anything. I find it relaxing. Photography I have a quality DSLR, and I love taking photos outside when I’m feeling up to it. Camping I feel the most relaxed and happy when I am able to disconnect and enjoy nature. Also, gives me lots to photograph. Reading/audiobooks Stories are essential, reading can improve empathy. The Scientific American and The Washington Post wrote articles about the subject. Fantasy, Sci-fi, horror, and graphic novels/comics. Learning new skills Games Board games, table-top, card,
I have some work deadlines coming up that I have to make, so I’m playing catch up because of the cold I had. Unfortunately, this leaves me with little time to work on blogging, at least for the next couple weeks. I will post if I manage to catch up sooner than I expect. *Crossing my fingers* I’ve been more tired than usual the past few days, so I’ve been napping quite a bit. I’m an independent contractor/freelancer due to my health issues, luckily I am able to wear many hats, as it were, due to my volunteer work and college classes. Self-care is important, don’t put yourself down for falling ill or having sick days. Your body needs you to take care of it. It’s cold and flu season, please use proper hygiene and consider wearing a mask, even if you aren’t sick. I carry a mask, hand sanitizer, and wash my hands extra when I’m out.
Allergies Yyyeeeaaahhh… I have a lot of these. >_> Sinus and topical: ALL THE THINGS! Grass, trees, pollen. If it’s a plant, I’m allergic. Note: I am that person who sniffs the flowers and has a sneezing fit anyway because I’m going to stop and smell the damn roses! Some molds. Cats and dogs. Is owned by multiple cats, allergies be damned. Anything floral scented. This stuff wreaks havoc on my skin, and I will break out in hives or eczema. It also causes my sinuses to swell up. I had to leave the holiday festivities early because the trash bags we were stuffing wrapping paper into were scented. Latex. In addition to a mild allergic reaction, the smell makes me nauseous. Adhesives, only some, but my skin will slough off and become irritated. Medications: Welbutrin Penicillin/Amoxicillin Cephalosporins – Keflex Tylenol allergy and sinus Yeah, ironic-ish. It’s a bonding agent that I have trouble with. Vaccines Again, a bonding agent.
Favorite Food Hmm. That’s tough. I don’t have a single favorite food, so I’ll list my top 5. Pizza! Sans tomato sauce because the acid bothers my GERD and IC. Cheese! I cannot do sharp/aged cheese, but I do love a good brie, mild cheddar, and smoked gouda. Dark Chocolate, enough said. Hashbrowns, chips, french fries. Mmmm potatoes. Red Radishes. They aren’t great for my GERD, IC, or IBS but I will still eat them on occasion because I love them so much. My diet is somewhat odd because I have to eat, or not eat, specific things to avoid flares of some of my health issues. Mainly the GERD, IC, and IBS. GERD – Gastroesophageal Reflux Disease IC – Interstitial Cystitis IBS – Irritable Bowel Syndrome
I’m going to be busy today and tomorrow so I’m doubling up. Happy Holidays! Day 2, Introduce your conditions If I had a dollar for everytime someone said, “You’re too young to be this sick!” Migraines Allergies/chronic rhinitis Tinnitus Complex PTSD/Anxiety/Depression/Mild OCD Arthritis (Osteo) Fibromyalgia Interstitial Cystitis Polycystic Ovary Syndrome Premenstrual Dysmorphic Disorder (Super PMS) IBS Eczema/contact dermatitis/atopic dermatitis GERD High possibility of mild narcolepsy and hip dysplasia (Not diagnosed, but the doctors suspect) Things I had in the past but are better after surgery/treatment Dysmenorrhea – I had a partial hysterectomy which helped greatly Gastroparesis – It’s not gone, but it is better Gallstones – Surgery helped Tonsilitis – Had them out as an adult, not fun, but I have fewer sinus infections and fall ill far less often now Septoplasty with turbinate reduction – Fixed the deviated septum in my nose and shaved down the turbinates, I can breathe through my nose more easily Day 3, Age your
A fellow (and more prolific) chronic illness blogger posted this as a way to challenge herself, and others, to blog more. These challenges are a great way to stay motivated and productive. You can find her blog here. 30 days and 30 posts! My answers will be at the end of the list. I am not able to do one a day so I’m renaming this challenge for myself. 1. Introduce yourself 2. Introduce your conditions 3. Age your symptoms began 4. Favorite food 5. Allergies 6. Hobbies 7. Your pain level 8. Distraction 9. Relief 10. Morning medications 11. Night medications 12. Guilty pleasure 13. Sleep outfit 14. Temperature you are comfortable at 15. A comfort item 16. A daily struggle 17. An achievement 18. Who/what keeps you going 19. Something your disability has taken from you. 20. Something you have gained because of your disability that you are grateful for. 21. Who/what inspires you. 22. Favorite helpful product